Peer Support

Peer Connect is a supportive place for people affected by neuromuscular conditions. MDNSW believes that people with disabilities are experts in their own lives. They become excellent navigators of many systems, innovative problem-solvers and hold the key to accessing information, support and services they need to participate in everyday life.

Life stage transitions are significant for those with NMCs and often include substantial increases in support needs. Peer Connect groups ensure that participants are empowered throughout life stage changes through connecting with others with similar lived experience. Hearing about other people’s journeys and experiences can make people feel like they are not alone. If others have had success, they feel more confident and motivated to try new things. Peer connection is powerful!

MDNSW facilitates a range of Peer Connect groups and events including topic based online groups, social events, age specific and condition specific groups. Check out our Peer Connect calendar here
Limb-Girdle MD Connect is a quarterly online meetup via Zoom for adults living with LGMD. It’s a great space to meet new people, share experiences and information, and connect with others who face similar challenges. There is a lot of emotional support and practical wisdom shared and members would warmly welcome new participants to the group.

Please RSVP to Carolyn on [email protected] to register and receive the link for Zoom.

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