Daniel Ferguson LGMD Foundation | Daniel Ferguson LGMD Foundation

Eliminate LGMD – Through fundraising for groundbreaking research, advanced support inventions, and a compassionate community, we aim to not only alleviate the suffering caused by LGMD but also to create a future where this debilitating disease no longer poses a threat.

We believe that together, we can rewrite the story of Limb-Girdle Muscular Dystrophy. We strive to offer renewed hope to individuals and families facing the challenges of this condition. Take control of your journey and sign up below.

Here individuals and families impacted by LGMD come together to drive change, inspire breakthroughs, and light up the path towards a future free from this challenging condition.

Daniel Ferguson Foundation

Welcome to the Daniel Ferguson Foundation, the first organisation of its kind in Australia that focuses on Limb-Girdle Muscular Dystrophy.

Our Story

At the pivotal age of 17, Daniel Ferguson received the life-altering diagnosis of LGMD Type R1, a genetic disorder that causes weakness of the hip and shoulder muscles in the limb-girdle region. This profound experience sparked the inception of The Daniel Ferguson Foundation, a support base for families embarking on their own LGMD journeys.

Our foundation is committed to enhancing the lives of those confronted by various forms of LGMD. We dedicate ourselves to elevating their quality of life, fostering widespread awareness about this disorder within our communities, and channeling essential resources into groundbreaking research for a condition that remains without a cure.

Together, we are cultivating a path of resilience and optimism, aspiring to a future where LGMD’s grip on lives is loosened and replaced with newfound possibilities.

Join us in our unwavering mission to Eliminate LGMD and Control your future.

LGMD Awareness Day

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LGMD Fact

It’s not limited to limbs and girdles: While the name suggests a focus on limb and girdle muscles, LGMD can affect muscles throughout the body, including the heart and respiratory muscles.

LGMD Fact

Age of onset varies: LGMD can manifest at different ages, from childhood to adulthood, it’s not limited to a specific age group.

LGMD Fact

Not always inherited from both parents: LGMD can be inherited in an autosomal dominant or recessive manner. In some cases, only one parent needs to carry the mutated gene for a child to be affected. The gene can also be ‘de novo’ or new, occurring for the first time in a family and not coming from either parent.

LGMD Fact

LGMD is not a single disorder: Limb-Girdle Muscular Dystrophy (LGMD) refers to a group of genetic disorders that affects muscles around the hips and shoulders. There are various subtypes of LGMD, each caused by different gene mutations. Daniel Ferguson’s, for example, is LGMD2A/R1.

LGMD Fact

Not contagious or preventable: LGMD is a genetic disorder, so it’s not contagious, and there is no way to prevent its occurrence if someone carries the relevant genetic mutation.

LGMD Fact

Research and understanding are evolving: Research is ongoing, and our understanding of LGMD is continuously advancing. New therapies and insights may emerge in the future.

LGMD Fact

Not the same as other muscle diseases: LGMD is distinct from other muscular dystrophies like Duchenne muscular dystrophy (DMD) or myotonic dystrophy (DM), each with its own characteristics and underlying genetic mutations.

LGMD Fact

Treatment options: There is currently no cure for LGMD, but various treatments, therapies, and management strategies can help improve quality of life and manage symptoms.

The Space Between the Stars – NSW Doctors Orchestra

Feb 13, 2024

The Space between the Stars on 26th May 2024 is the 21st annual charity concert of the NSW Doctors Orchestra, Musicus Medicus, conducted by Joanna Drimatis. Proceeds of the event will go to the Daniel Ferguson LGMD Foundation and the NSW Doctors Orchestra Instrumental...