Daniel Ferguson Foundation
Welcome to the Daniel Ferguson Foundation, the first organisation of its kind in Australia that focuses on Limb-Girdle Muscular Dystrophy.
Our Story
At the pivotal age of 17, Daniel Ferguson received the life-altering diagnosis of LGMD Type R1, a genetic disorder that causes weakness of the hip and shoulder muscles in the limb-girdle region. This profound experience sparked the inception of The Daniel Ferguson Foundation, a support base for families embarking on their own LGMD journeys.
Our foundation is committed to enhancing the lives of those confronted by various forms of LGMD. We dedicate ourselves to elevating their quality of life, fostering widespread awareness about this disorder within our communities, and channeling essential resources into groundbreaking research for a condition that remains without a cure.
Together, we are cultivating a path of resilience and optimism, aspiring to a future where LGMD’s grip on lives is loosened and replaced with newfound possibilities.
Join us in our unwavering mission to Eliminate LGMD and Control your future.
LGMD Awareness Day
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News & Updates
The Space Between the Stars – NSW Doctors Orchestra
The Space between the Stars on 26th May 2024 is the 21st annual charity concert of the NSW Doctors Orchestra, Musicus Medicus, conducted by Joanna Drimatis. Proceeds of the event will go to the Daniel Ferguson LGMD Foundation and the NSW Doctors Orchestra Instrumental...
2GB Sydney – DFF Annual Dinner
As heard on 2GB Sydney. The Daniel Ferguson LGMD Foundation will be hosting its Annual Fundraising Dinner
Daniel Ferguson LGMD Foundation Launch
The Daniel Ferguson LGMD Foundation has officially launched.
Sarepta Therapeutics
Sarepta Therapeutics Q1 2022 LGMD Community Letter